Resources for Care Coordinators

The resources below include government insurance and benefits programs; state governments; state Title V programs for CYSHCN; early intervention programs; public education agencies; community resources agencies; mental health resources; dental resources; professional organizations; and advocacy and support groups.


Information & Support

For Professionals
Free, confidential tool that helps you find government benefits children/families may be eligible to receive. Extensive.

Children's Health Insurance Program (CHIP)
This is the official U.S. government site for CHIP services; information includes eligibility, enrollment and general information about health insurance for kids.

Official U.S. government site for Medicaid services.

State Government Links
Hosted by the federal government, this website provides links to official websites in the U.S. states and territories.

State Title V Snapshots
Title V programs for children with special health care needs (CSHCN) with measures and goals. Maternal and Child Health Bureau, Federal-State Partnerships

State Part C Early Intervention Coordinators
Lists state contacts for Early Intervention (Part C) agencies offered by the National Early Childhood Technical Assistance Center (ECTA Center).

American Academy of Pediatrics Chapter List
The American Academy of Pediatrics (AAP) chapters are organized groups of pediatricians and other health care professionals working to achieve AAP goals in their communities.

Utah Chapter, American Academy of Pediatrics
American Academy of Pediatrics chapter site provides information about meetings, conferences, news, and other chapter activities.

American Academy of Family Physicians Chapter List

Genetics in Primary Care Institute (AAP)
This program aims to help primary care clinicians integrate genetic science and best practices into the care they provide their patients; American Academy of Pediatrics. Includes health supervision and management guidelines, and other useful resources; a collaboration among the Health Resources & Services Administration, the Maternal and Child Health Bureau, and the American Academy of Pediatrics.

For Parents and Patients


Family Voices
A national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs. Locate your center or F2F HIC (Family-to-Family Health Information Center) by state on this site.


Center for Parent Information & Resources Locator
Parent Centers are for families with a child who has a disability, as well as the professionals who work with them.


CMHI Pediatric Care Coordination Assessment (PDF Document 157 KB)
An example of a family/patient assessment form. Developed by the Center for Medical Home Improvement and Boston Children's Hospital.

Care Coordination Curriculum (Boston Children's)
This page describes and links to an extensive curriculum for training practice-based care coordinators; developed by Richard Antonelli, MD and others at Boston Children's Hospital.

Clinical Care Plan Template (Word Document 57 KB)
Editable care plan template. Developed by Jenna Robinson, Southpoint Pediatrics, West Jordan, Utah.

Family-Centered Care Assessment for Families (FCCA-F) (Word Document 242 KB)
A survey to measure the quality of family-centered care that a health care provider gives to a child and family; for pediatricians to give to families. Developed by Family Voices

Pre-visit Assessment Questions - sample (Word Document 68 KB)
Questions asked by Summit Pediatrics in Park City, Utah to patient's family by phone prior to an appointment.

Transition Providers Request Form (Word Document 61 KB)
A template letter to assess whether adult providers will take young adult patients with special health care needs.

Utah Pediatric Care Coordination Information Checklist (PDF Document 171 KB)
To be used as an assessment tool and in conjunction with the Utah Pediatric Shared Plan of Care.

Utah Pediatric Shared Plan of Care template (Word Document 72 KB)
To be used with the Care Coordination Information Checklist to coordinate care with all members of the care team, including families.

Authors & Reviewers

Initial Publication: October 2017; Last Update: November 2017
Current Authors and Reviewers (click on name for bio):
Authors: Jennifer Goldman-Luthy, MD, MRP, FAAP
Gina Pola-Money
Kathy Heffron, RN
Contributing Author: Mindy Tueller, MS