Specialized Information Resources

A locator tool allows cancer patients and oncology professionals to search for fertility preservation services in their area, and to submit referrals or request appointments through a secure online system.

Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Resources: Offers a variety of resources, including Job Connection, Blind/Low Vision resources, peer support, and more

Scholarships: Scholarships for freshman, undergraduate, and graduate students. To be eligible for a scholarship, applicants need to be legally blind, maintain a 3.0 GPA to be eligible for most scholarships, be a full-time student (as well as students who work 32 or more hours per week and attend college part time), and be involved in their school/local community.

Programs and Services: Audio Description Project, Advocacy and Governmental Affairs, Radio, and more.

• Medical Care Expense Assistance
• Internet Information Resources
• Disease/Disability Information

• Credit Reporting Agencies

• Specialized Information and Referral
• Health/Disability Related Support Groups

Offers the Big Red Safety Box for families. Also offers downloadable digital safety toolkits:

• Caregiver Toolkit
• First Responder Toolkit
• Teacher Toolkit

Offers a variety of resources for different audiences. These include Where to find swimming lessons; accidental drowning accounts for approximately 90% of lethal wandering outcomes.

Wandering defined: Wandering is the tendency for an individual to try to leave the safety of a responsible person’s care or a safe area, which can result in potential harm or injury. This might include running off from adults at school or in the community, leaving the classroom without permission, or leaving the house when the family is not looking. Wandering dangers include Drowning; Exposure; Dehydration; Hypothermia; Traffic Injuries; Falls; Physical Restraint; Encounters with strangers; Encounters with law enforcement.

The Autism Wandering Awareness Alerts Response and Education (AWAARE) Collaboration is a working group of six national non-profit autism organizations whose mission is to prevent autism-related wandering incidents and deaths.

• Specialized Information and Referral

Provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Information and Referral
Library Services

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.

Spanish-language line: 866-748-8008

Get essential information on costs for thousands of procedures and learn insurance basics. A national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. Search for medical and dental costs.

Internet-based service

National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.

Psychology Today's Therapy Directory is run here Sussex Directories.

GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic disease. In addition to website-based information you may contact a GARD Information Specialist. Also, GARD develops guides with tips on general topics, important resources, and answers to questions that patients, their families, and friends often ask us.

GARD is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI).

Govbenefits.com is a free confidential prescreening tool for state and federal government programs. Search for benefits you may be able to receive.

Internet resource, State and Federal resources
Partners with USA.gov

• General Health Insurance Information/Counseling

IMPACT provides a variety of educational resources and tools for understanding aspects of raising a health family.

IMPACT stands for Improving Maternal Child Health Programs and Policies so All Children Thrive. IMPACT is a project of national Family Voices.

IMPACT promotes a holistic approach to health and wellness for all families and children including those with special healthcare needs and disabilities.

IMPACT elevates and expands the capacity of family organizations – those that serve all children as well as those that serve children with special needs and disabilities  –  to educate and inform families about lifestyle strategies and choices that positively impact the long-term good health of children. 

IMPACT promotes health and wellness by developing materials and tools and sharing other resources that help families learn skills to build healthy relationships, healthy families, and healthy communities.

A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.

• Disease/Disability Information
• Health/Disability Related Support Groups

• Specialized Information and Referral
• Patient/Family Housing

web-based services locator

• Specialized Information and Referral

Provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus. An online community, an expert series, a resource database, a nurse and certified health educator call line.

Chapter Finder: Find support and connection in your community.

MaleSurvivor fosters a healing community where tens of thousands of men from more than 200 countries come together to find support, information and — most importantly — hope. Services include online forum, support groups, find a therapist, and resources for family members and loved ones of victims.

Support Groups: Find support groups, events, and reading recommendations.

Find a Therapist: Search clinics and clinicians by name or location.

For parents: Resources for parents of sexual abuse survivors.

Seeks to improve the health of babies by preventing birth defects and reducing infant mortality. Campaigns for Healthier Babies, which includes programs of research, community service, education and advocacy.

Information and Referral
Library Services

Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas. Collects and disseminates research information related to neurological disorders.

Information and Referral
Library Services

Information on HIV/AIDS conferences, news and events, public policy, resources, technical assistance, treatment information and hotlines.

AKA National Minority AIDS Council

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral

• Disease/Disability Information
• Internet Information Resources
• Specialized Information and Referral

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral
• Medical Information Services

Provides information and treatment options for eating disorders.

Confidential Helpline Monday-Thursday (800-931-2237) from 9am to 9pm ET and Friday from 9am to 5pm ET.

24/7 crisis support: text 'NEDA' to 741741

Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases

Information and Referral

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Health information: mental health, getting help, statistics, clinical trials; outreach, research, opportunities for funding, labs at NIMH.

• Specialized Information and Referral
• Clinical Trials
• Disease/Disability Information

• Medical Care Expense Assistance
• Specialized Information and Referral

Online resources

Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need, advocating for increased access to all family building options, and reducing the stigma of this disease through public education.

• Specialized Information and Referral
• Infertility Support Groups

• Drug Use Disorder Support Groups
• Alcohol Use Disorder Support Groups
• Families/Friends of Individuals With an Alcohol Use Disorder Support Groups
• Families/Friends of Individuals With a Drug Use Disorder Support Groups

SMA, part of the Childhood Anxiety Network, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child with the anxiety disorder known as Selective Mutism (SM).

SMA is the nation’s premier resource for information on SM. Provides a network of professionals, families and affected individuals across the world who understand the struggle of living in silence.

SMA Support Groups by State: list of SMA support groups.