Disability Awareness Programs

Suggest a New Provider

Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

If you know of a Service that should be listed but isn't, please Suggest a New Provider. If you find errors in a listing, please let us know by using the "Suggest an Edit" form on the provider's detail page.
Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

MT (6)

Statewide (1)

Billings (3)

Kalispell (1)

Missoula (1)

Nationwide (38)

MT

Statewide

Disability RIGHTS Montana

1022 Chestnut St
Helena, MT 59601
Phone: 406-449-2344

Service Categories:

www.disabilityrights.org

Address: 1022 Chestnut St
Helena, MT 59601

Phone: 406-449-2344

Toll Free Phone: 800-245-4743

Fax: 406-449-2418

Service Categories:

Email: advocate@disabilityrightsmt.org

URL: http://www.disabilityrights.org

Eligibility: All children and adults with a disability are eligible for services.

Wheelchair Accessible: Yes

Services Provided: Disability Rights Montana envisions a society where people with disabilities have equality of opportunity and are able to participate fully in community life by exercising choice and self-determination. The Mission of Disability Rights Montana is to protect and advocate for the human, legal, and civil rights of Montanans with disabilities while advancing dignity, equality, and self determination.

Original Source:	Montana Children's Special Health Services
Last Updated:	4/1/2019

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Billings, MT

Blind and Low Vision Services

2121 Rosebud Drive, Ste. C
Billings, MT 59102
Phone: 406-248-4801

Service Categories:

dphhs.state.mt.us/dsd/index.htm

Address: 2121 Rosebud Drive, Ste. C
Billings, MT 59102

Phone: 406-248-4801

TDD: 406-652-6046

Fax: 406-652-1781

Service Categories:

URL: http://dphhs.state.mt.us/dsd/index.htm

Wheelchair Accessible: Yes

Services Provided: Voc-rehabilitation for the blind/visually impaired. Medical-vocational diagnosis, counseling, blindness prevention, rehabilitation, low-vision screening, mobility and training

Original Source:	Montana Children's Special Health Services
Last Updated:	8/1/2013

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Muscular Dystrophy Association of Montana

2132 Broadwater Suite A
Billings, MT 59102
Phone: 406-655-9000

Service Categories:

mda.org/office/montana

Address: 2132 Broadwater Suite A
Billings, MT 59102

Phone: 406-655-9000

Service Categories:

URL: http://mda.org/office/montana

Services Provided: Serving the state of Montana

Original Source:	Montana Children's Special Health Services
Last Updated:	12/20/2014

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Yes Kids (Yellowstone County’s Extra Special Kids with Chromosomal Variation)

3814 Parkhill Drive
Billings, MT 59102
Phone: 406-256-0469

Service Categories:

www.yeskids-mt.com

Address: 3814 Parkhill Drive
Billings, MT 59102

Phone: 406-256-0469

Service Categories:

URL: http://www.yeskids-mt.com

Services Provided: Our goal is to provide financial and emotional support to children, adults and families of those with chromosomal variations, as they navigate the beautiful, rewarding world of special needs. They have access to resources such as genetic counselor, social worker, all kinds of therapists, naturopathic physician, teachers and parents of children with special needs of all ages and abilities. They organize the annual fundraising Buddy Walk, a resource library, monthly parent support groups, Christmas dinner, Barbecue etc. As Down syndrome is the most common chromosomal variation, they are mostly parents of children with Down syndrome and vocal advocates for them.

Original Source:	Montana Children's Special Health Services
Last Updated:	2/1/2015

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Kalispell, MT

Summit Independent Living Center

1203 Highway 2 W, Ste. 35
Kalispell, MT 59901
Phone: 406-257-0048

Service Categories:

www.summitilc.org

Address: 1203 Highway 2 W, Ste. 35
Kalispell, MT 59901

Phone: 406-257-0048

Toll Free Phone: 800-995-0029

Service Categories:

URL: http://www.summitilc.org

Languages Spoken: English, Russian, and Sign Language interpreters available

Eligibility: Individuals of all ages with all types of disabilities are eligible for Summit services.

Wheelchair Accessible: Yes

Services Provided: Summit Independent Living Center, Inc. is a private, non-residential non-profit organization that offers a wide range of services designed to give people with disabilities the tools and resources that are needed to improve independence, self-confidence, knowledge, skills, and access to community resources. Five core service areas include:
Information and Referrals
Advocacy
Peer Advocacy
Skills Training
Transition Services
Skills Training

Original Source:	Montana Children's Special Health Services
Last Updated:	2/13/2018

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Missoula, MT

Brain Injury Alliance of Montana

1280 S. 3rd Street West, Suite 4
Missoula, MT 59801
Phone: 406-541-6442

Service Categories:

biamt.org/

Address: 1280 S. 3rd Street West, Suite 4
Missoula, MT 59801

Phone: 406-541-6442

Toll Free Phone: 800-241-6442

Service Categories:

URL: http://biamt.org/

Services Provided: “To create a better future for those impacted by brain injury through awareness, support, advocacy, community engagement, and the prevention of brain injury.”

Original Source:	Montana Children's Special Health Services
Last Updated:	12/20/2014

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Nationwide

Academy for Eating Disorders

11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079

Service Categories:

www.aedweb.org

Address: 11130 Sunrise Valley Drive Ste 350
Reston, VA 20191

Phone: 703-234-4079

Fax: 703-435-4390

Service Categories:

Email: info@aedweb.org

URL: http://www.aedweb.org

Eligibility: Open to the public.

Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	7/2/2019

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Alexander Graham Bell Assoc for the Deaf & Hard of Hearing

3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220

Service Categories:

www.agbell.org

Address: 3417 Volta Place NW
Washington, DC 20007

Phone: 202-337-5220

TDD: 202-337-5221

Fax: 202-337-8314

Service Categories:

Email: info@agbell.org

URL: http://www.agbell.org

Eligibility: Individuals who are deaf or hard of hearing.

Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.

Original Source:	MedHome Portal
Last Updated:	8/6/2019

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American Association on Intellectual and Developmental Disabilities

501 3rd Street NW Suite 200
Washington, DC 20001
Phone: 202-387-1968

Service Categories:

www.aaidd.org

Address: 501 3rd Street NW Suite 200
Washington, DC 20001

Phone: 202-387-1968

Fax: 202-387-2193

Service Categories:

URL: http://www.aaidd.org

Services Provided: AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/8/2019

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American Cancer Society

250 Williams Street NW
Atlanta, GA 30303

Service Categories:

www.cancer.org

Address: 250 Williams Street NW
Atlanta, GA 30303

TDD: 866-228-4327

Toll Free Phone: 800-227-2345

Service Categories:

URL: http://www.cancer.org

Wheelchair Accessible: Full Wheelchair Access

Services Provided: Dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy and service.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/7/2019

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American Childhood Cancer Society

6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520

Service Categories:

www.acco.org/

Address: 6868 Distribution Drive, Suite 460
Beltsville, MD 20705

Phone: 301-962-3520

Toll Free Phone: 855-858-2226

Fax: 301-962-3521

Service Categories:

URL: https://www.acco.org/

Services Provided: As a leader in the national fight against childhood cancer, we speak for the needs of families and survivors, and in doing so, we help shape policy, research, and programs, nationally and internationally, that affect the lives of cancer-stricken families today and tomorrow.

Co-Parenting Workshops
Family Support Centers/Outreach
Information and Referral
Library Services
Parent Support Groups
Support Groups
System Advocacy

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/7/2019

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American Diabetes Association

2451 Crystal Drive, Suite 900
Arlington, VA 22202

Service Categories:

www.diabetes.org/

Address: 2451 Crystal Drive, Suite 900
Arlington, VA 22202

Toll Free Phone: 800-342-2383

Service Categories:

URL: http://www.diabetes.org/

Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.

Original Source:	MedHome Portal
Last Updated:	7/30/2019

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American Kidney Fund

11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052

Service Categories:

www.kidneyfund.org

Address: 11921 Rockville Pike Ste 300
Rockville, MD 20852

Phone: 301-881-3052

Toll Free Phone: 800-638-8299

Fax: 301-881-3311

Service Categories:

Email: aandors@kidneyfund.org

URL: http://www.kidneyfund.org

Eligibility: Kidney patients and health care professionals.

Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. Financial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Medical Expense Assistance

Provider Profiles: Internet Information Resource

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/12/2019

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American Lung Association National Headquarters

55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700

Service Categories:

www.lung.org/

Address: 55 West Wacker Drive, Suite 1150
Chicago, IL 60601

Phone: 212-315-8700

Toll Free Phone: 800-586-4872

Service Categories:

URL: https://www.lung.org/

Services Provided: Improving lung health and preventing lung disease through Education, Advocacy and Research. With the generous support of the public, we are "Fighting for Air."

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/12/2019

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American Society for Deaf Children (ASDC)

PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992

Service Categories:

deafchildren.org/

Address: PO Box 3355
Gettysburg, PA 17325

Phone: 717-334-7992

Toll Free Phone: 800-942-2732

Service Categories:

Email: asdc@deafchildren.org

URL: http://deafchildren.org/

Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.

Original Source:	MHP-Nationwide
Last Updated:	4/23/2019

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Arc of the United States: for People with Intellectual and Developmental Disabilities

1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842

Service Categories:

thearc.org/

Address: 1825 K Street NW, Suite 1200
Washington, DC 20006

Phone: 301-565-3842

Toll Free Phone: 800-433-5255

Fax: 301-565-3843

Service Categories:

URL: https://thearc.org/

Eligibility: developmental disabilities

Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.

Original Source:	MedHome Portal
Last Updated:	8/6/2019

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1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050

Service Categories:

www.autismspeaks.org/

Address: 1 East 33rd Street, 2nd Floor
New York, NY 10016

Phone: 888-772-9050

Toll Free Phone: 888-288-4762

Service Categories:

Email: familyservices@autismspeaks.org

URL: https://www.autismspeaks.org/

Eligibility: People with autism, their families and caregivers.

Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/6/2019

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Autism Wandering Awareness Alerts Response and Education (AWAARE), National Autism Association

Service Categories:

awaare.nationalautismassociation.org

Organization Name: National Autism Association

Address:

Service Categories:

Email: naa@nationalautism.org

URL: http://awaare.nationalautismassociation.org

Eligibility: Open to all.

Services Provided: An online resource of six national nonprofit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.
Includes "Where to find swimming lessons."

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	3/21/2019

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Autistic Self Advocacy Network (ASAN)

PO Box 66122
Washington, DC 20035

Service Categories:

autisticadvocacy.org/about-asan/

Address: PO Box 66122
Washington, DC 20035

Service Categories:

Email: info@autisticadvocacy.org

URL: https://autisticadvocacy.org/about-asan/

Services Provided: The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Policy advocacy toolkits, action alerts.

Original Source:	MHP-Nationwide
Last Updated:	4/2/2019

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275 Seventh Avenue
New York, NY 10001
Phone: 212-712-8400

Service Categories:

www.cancercare.org

Address: 275 Seventh Avenue
New York, NY 10001

Phone: 212-712-8400

Toll Free Phone: 800-813-4673

Fax: 212-712-8495

Service Categories:

URL: http://www.cancercare.org

Eligibility: Cancer patients, survivors and caregivers. Liimited grants for certain expenses related to cancer treatment.

Services Provided: Provides online, telephone and in-person counseling, support groups, educational workshops, publications, financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	6/3/2019

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CdLS Foundation, Cornelia de Lange Syndrome Foundation

302 West Main Street Unit 100
Avon, CT 06001
Phone: 860-753-2357

Service Categories:

www.cdlsusa.org/additional-family-resources/

Organization Name: Cornelia de Lange Syndrome Foundation

Address: 302 West Main Street Unit 100
Avon, CT 06001

Phone: 860-753-2357

Toll Free Phone: 800-223-8355

Fax: 860-676-8337

Service Categories:

URL: https://www.cdlsusa.org/additional-family-resources/

Services Provided: A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.

Provider Profiles: M - F 8:30 - 5 ET

Original Source:	MHP-Nationwide
Last Updated:	8/6/2019

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Council of Citizens with Low Vision International

1703 N. Beauregard Street
Alexandria, VA 22311

Service Categories:

www.cclvi.org

Address: 1703 N. Beauregard Street
Alexandria, VA 22311

Toll Free Phone: 800-733-2258

Service Categories:

URL: http://www.cclvi.org

Services Provided: With the purposes of: establish the right of persons with low vision to make full use of their vision through all available aids, services and technology; provide a mechanism through which low vision people can express their individual needs, interests and preferences; educate the general public, professionals, and low vision people themselves as to the potentialities, capabilities, and needs of low vision people; establish outreach programs to insure that all individuals with low vision have access to necessary services; promote research to prevent blindness, improve maximum utilization of sight, and improve environmental conditions and access for low vision people; support the development of and expansion of pre-service and in-service training programs to improve the quality and quantity of medical and rehabilitative low vision services.

System Advocacy

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/12/2019

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Crohn's & Colitis Foundation of America

733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423

Service Categories:

www.ccfa.org

Address: 733 Third Ave Ste 510
New York, NY 10017

Phone: 800-932-2423

Service Categories:

Email: info@ccfa.org

URL: http://www.ccfa.org

Eligibility: Crohn's and Colitis patients, their families and medical professionals.

Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	3/21/2019

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Epilepsy Foundation of America

8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700

Service Categories:

www.epilepsy.com/

Address: 8301 Professional Place East Ste 230
Landover, MD 20785-2356

Phone: 301-459-3700

Toll Free Phone: 800-332-1000

Fax: 301-577-2684

Service Categories:

Email: ContactUs@efa.org

URL: https://www.epilepsy.com/

Eligibility: Individuals with epilepsy, their families and friends.

Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.

Provider Profiles: Spanish Speakers Phone number: 866-748-8008

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/6/2019

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Five P Minus Society, 5p- (five p minus) Society

6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777

Service Categories:

www.fivepminus.org

Organization Name: 5p- (five p minus) Society

Address: 6229 Eckleson Street
Lakewood, CA 90713

Phone: 888-970-0777

Toll Free Phone: 888-970-0777

Fax: 562-920-5240

Service Categories:

URL: http://www.fivepminus.org

Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.

Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	6/20/2019

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Genetic Alliance

4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557

Service Categories:

www.geneticalliance.org/

Address: 4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008

Phone: 202-966-5557

Fax: 202-966-8553

Service Categories:

URL: http://www.geneticalliance.org/

Services Provided: A partnership of self-help groups and professionals, Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community-based family history. Current programs include: Advocacy ATLAS, Community Centered Family Health History, Consumer Focused Newborn Screening, and Access to Credible Genetics Resources Network

Original Source:	MedHome Portal
Last Updated:	12/18/2017

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Gigi's Playhouse, Down Syndrome Achievement Centers

2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147

Service Categories:

gigisplayhouse.org/

Organization Name: Down Syndrome Achievement Centers

Address: 2350 West Higgins Road
Hoffman Estates, IL 60169

Phone: 847-885-6147

Service Categories:

Email: info@gigisplayhouse.org

URL: https://gigisplayhouse.org/

Eligibility: Individuals with Down syndrome, their families and the community

Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!

Original Source:	MedHome Portal
Last Updated:	7/17/2018

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Laurent Clerc National Deaf Education Center, Gallaudet University

KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051

Service Categories:

clerccenter.gallaudet.edu/

Organization Name: Gallaudet University

Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695

Phone: 202-651-5051

TDD: 202-651-5052

Fax: 202-651-5054

Service Categories:

URL: http://clerccenter.gallaudet.edu/

Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.

Original Source:	MedHome Portal
Last Updated:	7/16/2018

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Lucile Packard Foundation for Children's Health

400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365

Service Categories:

www.lpfch.org/

Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301

Phone: 650-497-8365

Service Categories:

URL: http://www.lpfch.org/

Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.

Original Source:	MedHome Portal
Last Updated:	2/21/2018

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ME/CFS and Fibromyalgia Center of Excellence, Bateman Horne Center of Excellance

24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080

Service Categories:

batemanhornecenter.org/

Organization Name: Bateman Horne Center of Excellance

Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102

Phone: 801-328-8080

Fax: 1-866-555-1122

Service Categories:

Email: support@batemanhornecenter.org

URL: http://batemanhornecenter.org/

Eligibility: None

Wheelchair Accessible: Complete

Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.

Provider Profiles: Lucinda Bateman M.D.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	3/21/2019

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Mended Hearts/Mended Little Hearts

1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680

Service Categories:

mendedhearts.org/

Address: 1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707

Phone: 229-518-2680

Toll Free Phone: 888-432-7899

Fax: 229-518-3879

Service Categories:

Email: info@mendedhearts.org

URL: https://mendedhearts.org/

Eligibility: Patients and families of children with congenital heart disease.

Services Provided: Mended Little Hearts services include: peer support and education, education resources, hospital outreach, CHD awareness, community health education, online community, and advocacy. Locator for a chapter nearby.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	9/10/2019

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Muscular Dystrophy Association, National

222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717

Service Categories:

www.mda.org/

Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606

Phone: 800-572-1717

Service Categories:

Email: ResourceCenter@mdausa.org

URL: https://www.mda.org/

Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.

Original Source:	MHP-Nationwide
Last Updated:	5/22/2019

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Service Categories:

adapt.org/

Address:

Service Categories:

Email: contactus@adapt.org

URL: https://adapt.org/

Services Provided: A national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Key issue is affordable, accessible, integrated housing. Access Across America is a proposal to HUD for a national program.

Original Source:	MHP-Nationwide
Last Updated:	2/5/2019

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National Association of Anorexia Nervosa and Associated Disorders (ANAD)

220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330

Service Categories:

anad.org/

Address: 220 North Green Street
Chicago, IL 60607

Phone: 630-557-1330

Service Categories:

Email: hello@anad.org

URL: https://anad.org/

Eligibility: Eating disorders

Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/6/2019

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National Association of the Deaf

8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788

Service Categories:

www.nad.org/

Address: 8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819

Phone: 301-587-1788

TDD: 301-587-1789

Fax: 301-587-1791

Service Categories:

URL: https://www.nad.org/

Eligibility: deaf and hard of hearing

Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.

Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.

Original Source:	MedHome Portal
Last Updated:	8/6/2019

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National Brain Tumor Society

55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997

Service Categories:

www.braintumor.org

Address: 55 Chapel Street, Ste 200
Newton, MA 02458

Phone: 617-924-9997

Fax: 617-924-9998

Service Categories:

URL: http://www.braintumor.org

Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.

Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	7/1/2019

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National Disabilities Rights Network (NDRN)

820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514

Service Categories:

www.ndrn.org/index.php

Address: 820 1st Street NE, Suite 740
Washington, DC 20002

Phone: 202-408-9514

TDD: 202-408-9521

Fax: 202-408-9520

Service Categories:

URL: http://www.ndrn.org/index.php

Eligibility: People with disabilities

Services Provided: Guards against abuse, advocating for basic rights, and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.Works on behalf of the federally mandated Protection and Advocacy P&A Systems and the Client Assistance Programs CAP for individuals with disabilities.

Assistive Technology Equipment
Information and Referral
Library Services
System Advocacy

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/7/2019

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National Kidney Foundation

30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010

Service Categories:

www.kidney.org/

Address: 30 East 33rd Street
New York, NY 10016

Phone: 800-622-9010

Toll Free Phone: 800-622-9010

Service Categories:

URL: https://www.kidney.org/

Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.

Original Source:	MHP-Nationwide
Last Updated:	8/13/2019

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National Mental Health Information Center, Substance Abuse and Mental Health Services Administration (SAMHSA)

1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357

Service Categories:

findtreatment.samhsa.gov/locator?sType=mh

Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)

Address: 1 Choke Cherry Road
Rockville, MD 20857

Phone: 800-662-4357

Service Categories:

URL: https://findtreatment.samhsa.gov/locator?sType=mh

Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.

Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.

Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.

Original Source:	MedHome Portal
Last Updated:	7/30/2019

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Needs Beyond Medicine

PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626

Service Categories:

www.needsbeyondmedicine.org/

Address: PO Box 521618
Salt Lake City, UT 84152

Phone: 385-645-4626

Service Categories:

Email: info@needsbeyondmedicine.org

URL: http://www.needsbeyondmedicine.org/

Eligibility: Cancer patients

Services Provided: Provides financial assistance grants and online educational materials / workshops for cancer patients. Financial assistance is for non-medical expenses, such as transportation, rent and other living costs. Does not provide medical advice, diagnosis or treatment.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	3/21/2019

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PACER Center: Parents Helping Parents

8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000

Service Categories:

www.pacer.org

Address: 8161 Normandale Blvd.
Bloomington, MN 55437

Phone: 952-838-9000

Toll Free Phone: 800-537-2237

Service Categories:

URL: http://www.pacer.org

Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.

Original Source:	MedHome Portal
Last Updated:	8/2/2018

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Pancreatic Cancer Action Network

1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025

Service Categories:

www.pancan.org

Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266

Phone: 310-725-0025

Toll Free Phone: 877-573-9971

Fax: 310-725-0029

Service Categories:

Email: info@pancan.org

URL: http://www.pancan.org

Eligibility: Cancer patients, survivors, and their families

Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	7/23/2019

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Rettsyndrome.org

4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388

Service Categories:

www.rettsyndrome.org

Address: 4600 Devitt Drive
Cincinnati, OH 45246

Phone: 800-818-7388

Toll Free Phone: 800-818-7388

Service Categories:

Email: admin@rettsyndrome.org

URL: http://www.rettsyndrome.org

Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.

Original Source:	MedHome Portal
Last Updated:	8/6/2019

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United Cerebral Palsy Association

1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406

Service Categories:

ucp.org/

Address: 1825 K Street NW, Suite 600
Washington, DC 20006

Phone: 202-776-0406

Toll Free Phone: 800-872-5827

Fax: 202-776-0414

Service Categories:

URL: https://ucp.org/

Services Provided: UCP and its 64 affiliates have a mission to advance the independence, productivity and full citizenship of people with a broad range of disabilities by providing services and support to more than 176,000 children and adults every day. UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/8/2019

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