Disability Awareness Programs

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Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

2121 Rosebud Drive, Ste. C
Billings, MT 59102
Phone: 406-248-4801
Service Categories:
Address:
2121 Rosebud Drive, Ste. C
Billings, MT 59102
Phone: 406-248-4801
TDD: 406-652-6046
Fax: 406-652-1781
Wheelchair Access: Yes
Services Provided:

Voc-rehabilitation for the blind/visually impaired. Medical-vocational diagnosis, counseling, blindness prevention, rehabilitation, low-vision screening, mobility and training

Source: Montana Children's Special Health Services
Last Updated: 9/20/2021
3535 West Broadway #6
Missoula, MT 59808
Phone: 406-541-6442
Service Categories:
Address:
3535 West Broadway #6
Missoula, MT 59808
Phone: 406-541-6442
Toll Free Phone: 800-241-6442
Fax: 406-541-4360
Email: info@biamt.org
Services Provided:

To create a better future for those impacted by brain injury through awareness, support, advocacy, community engagement, and the prevention of brain injury.

Brain injury helpline: Often a person faces a lot of uncertainty after brain injury, including the transition back to work or school, funding options, recreation, family and spousal relationships, and coping with ongoing fatigue, headaches, and depression. The Brain Injury Help Line is a free, statewide telephone service available that provides support to persons affected by brain injury and their families. The service is voluntary and while many participants are referred at the point of discharge from the hospital, anyone can self-refer or be referred by a professional. Individuals can participate at any point after a brain injury. Individuals and their family members can also contact the Alliance directly at (800) 241-6442 to participate in this service.

Speakers bureau: The need to educate consumers, professionals, and the general public concerning brain injury has been a priority of the Brain Injury Alliance of Montana since its inception. The Brain Injury Alliance Speakers Bureau has been established to help support the mission of the Alliance to raise the awareness of brain injury issues. These services are available through the Alliance and the many resources in our state.

Source: Montana Children's Special Health Services
Last Updated: 5/21/2021
3814 Parkhill Drive
Billings, MT 59102
Phone: 406-256-0469
Service Categories:
Address:
3814 Parkhill Drive
Billings, MT 59102
Phone: 406-256-0469
Services Provided: Our goal is to provide financial and emotional support to children, adults and families of those with chromosomal variations, as they navigate the beautiful, rewarding world of special needs. They have access to resources such as genetic counselor, social worker, all kinds of therapists, naturopathic physician, teachers and parents of children with special needs of all ages and abilities. They organize the annual fundraising Buddy Walk, a resource library, monthly parent support groups, Christmas dinner, Barbecue etc. As Down syndrome is the most common chromosomal variation, they are mostly parents of children with Down syndrome and vocal advocates for them.
Source: Montana Children's Special Health Services
Last Updated: 12/26/2019
1203 Highway 2 W, Ste. 35
Kalispell, MT 59901
Phone: 406-257-0048
Service Categories:
Address:
1203 Highway 2 W, Ste. 35
Kalispell, MT 59901
Phone: 406-257-0048
Toll Free Phone: 800-995-0029
Wheelchair Access: Yes
Languages Spoken: English, Russian, and Sign Language interpreters available
Eligibility: Individuals of all ages with all types of disabilities are eligible for Summit services.
Services Provided: Summit Independent Living Center, Inc. is a private, non-residential non-profit organization that offers a wide range of services designed to give people with disabilities the tools and resources that are needed to improve independence, self-confidence, knowledge, skills, and access to community resources. Five core service areas include:
Information and Referrals
Advocacy
Peer Advocacy
Skills Training
Transition Services
Skills Training
Source: Montana Children's Special Health Services
Last Updated: 2/13/2018
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Service Categories:
Address:
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Source: MHP-Nationwide
Last Updated: 8/13/2019
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Service Categories:
Address:
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Source: Medical Home Portal
Last Updated: 8/6/2019
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Service Categories:
Organization Name: Gallaudet University
(Show others in Organization)
Address:
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided:

Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.

Source: MHP-Nationwide
Last Updated: 3/18/2021
3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
Service Categories:
Address:
3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Fax: 202-337-8314
Email: info@agbell.org
Eligibility: Individuals who are deaf or hard of hearing.
Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.
Source: MHP-Nationwide
Last Updated: 1/7/2020
PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Service Categories:
Address:
PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Toll Free Phone: 800-942-2732
Email: asdc@deafchildren.org
Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.
Source: MHP-Nationwide
Last Updated: 1/7/2020
1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Service Categories:
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
(Show others in Organization)
Address:
1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Source: MHP-Nationwide
Last Updated: 1/17/2020
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Service Categories:
Address:
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Fax: 202-966-8553
Services Provided:

Mission: Genetic Alliance engages individuals, families, and communities to transform health.

Active Programs:

  • Advocacy-Led Research: Research tools for individuals and communities
  • Expecting Health: Assistance for all stages of family planning, including preconception and advocacy
  • Stakeholder Engagement: Facilitates communication across multidisciplinary stakeholders.
Provider Profiles:

Genetic Alliance was incorporated on October 31, 1986 as the Alliance of Genetic Support Groups. AGSG changed its name to Genetic Alliance in 2000.

Source: MHP-Nationwide
Last Updated: 6/8/2020
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Service Categories:
Address:
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Source: Medical Home Portal
Last Updated: 8/6/2019
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Service Categories:
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Source: MHP-Nationwide
Last Updated: 1/7/2020
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Service Categories:
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Source: MHP-Nationwide
Last Updated: 1/7/2020
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Service Categories:
Address:
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Services Provided:

Since 1950, we've spearheaded efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases. We fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country.

Source: MHP-Nationwide
Last Updated: 6/3/2021
UT
Service Categories:
Address:
UT
Email: childgenetics@gmail.com
Services Provided:

Aware of Angels is a nonprofit photography project that advocates for children who have genetic, rare or undiagnosed disorders with a photography and blog project. AOA brings awareness to and shares stories and images of children with genetic disorders and those needing a diagnosis.

Source: MHP-Nationwide
Last Updated: 6/22/2020
900 East Hill Ave, Suite 390
Knoxville, TN 37915
Service Categories:
Organization Name: Amputee Coalition
(Show others in Organization)
Address:
900 East Hill Ave, Suite 390
Knoxville, TN 37915
Toll Free Phone: 888-267-5669
Eligibility: Ages 10-17 who have limb loss or limb differences.
Services Provided:

Resources and support for individuals with limb loss and their families. Advocacy information and resources for state and national advocacy.

Paddy Rossbach Youth Camp: A 6-day traditional summer camp experience for children with limb loss and limb difference to increase self-confidence and self-esteem through a traditional and supportive summer camp experience. The Amputee Coalition arranges travel plans for all camp attendees. Cost: none! thanks to sponsors and donors. Opportunities for camp counselors ages 18-19 and age 20 and above.

Provider Profiles:

2016 dates July 8 - 16.

Source: MHP-Nationwide
Last Updated: 9/22/2020
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Service Categories:
Address:
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Source: MHP-Nationwide
Last Updated: 1/7/2020
30 Tower Lane
Avon, CT 06001
Phone: 860-753-2357
Service Categories:
Address:
30 Tower Lane
Avon, CT 06001
Phone: 860-753-2357
Toll Free Phone: 800-223-8355
Fax: 860-676-8337
Services Provided:

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.

Additional Family Resources: Medical Cards, Family Map, CoRDS Registry, CdLS Discussion Board

Provider Profiles:

M - F 8:30 - 5 ET

Source: MHP-Nationwide
Last Updated: 10/28/2020
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Service Categories:
Organization Name: Down Syndrome Achievement Centers
(Show others in Organization)
Address:
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Email: info@gigisplayhouse.org
Eligibility: Individuals with Down syndrome, their families and the community
Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!
Provider Profiles: Over 30 locations across the United States and Mexico and 200 inquiries to start new locations all over the world.
Source: MHP-Nationwide
Last Updated: 9/25/2019
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Service Categories:
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Source: MHP-Nationwide
Last Updated: 1/6/2020
ADAPT View on Map
4513 Tyson Ave.
Philadelphia, PA 19135
Service Categories:
Address:
4513 Tyson Ave.
Philadelphia, PA 19135
Email: contactus@adapt.org
Services Provided:

A national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Key issue is affordable, accessible, integrated housing. Access Across America is a proposal to HUD for a national program.

Offers a directory of Local ADAPT Groups.

Source: MHP-Nationwide
Last Updated: 8/31/2020
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Service Categories:
Address:
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-832-4545
Email: info@aedweb.org
Services Provided:

Provides research, educational forums, publications, subject matter experts, and current information on treatment and prevention of eating disorders.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
11921 Rockville Pike, Suite 300
Rockville, MD 20852
Phone: 800-638-8299
Service Categories:
Address:
11921 Rockville Pike, Suite 300
Rockville, MD 20852
Phone: 800-638-8299
Toll Free Phone: 866-300-2900
Email: helpline@kidneyfund.org
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy, and resources for kidney patients and health care professionals in English and Spanish. Programs for children include the Summer Enrichment Program and the annual Calendar Kids Art Contest.

  • Medical Care Expense Assistance
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Service Categories:
Organization Name: National Autism Association
(Show others in Organization)
Address:
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Email: naa@nationalautism.org
Eligibility: No restrictions
Services Provided:

An online resource of six national non-profit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
Cancer Care View on Map
275 Seventh Avenue
New York, NY 10001
Phone: 800-813-4673
Service Categories:
Address:
275 Seventh Avenue
New York, NY 10001
Phone: 800-813-4673
Toll Free Phone: 800-813-4673
Fax: 212-712-8495
Email: info@cancercare.org
Services Provided:

Provides online, telephone, and in-person counseling, support groups, educational workshops, publications, financial, and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.

COVID-19 UPDATE: All services are available via telephone and online. Please call with any questions.

  • Health/Disability Related Support Groups
  • Medical Care Expense Assistance
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
733 Third Avenue, Suite 510
New York, NY 10017
Phone: 800-932-2423
Service Categories:
Address:
733 Third Avenue, Suite 510
New York, NY 10017
Phone: 800-932-2423
Email: info@crohnscolitisfoundation.org
Eligibility:

Crohn's and Colitis patients, their families and medical professionals.

Services Provided:

The Crohn's & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.

COVID-19 UPDATE: Following all CDC and State guidelines. Please contact to verify if support group is meeting online or in person.

  • Specialized Information and Referral
  • Disease/Disability Information
  • Research Funds
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Service Categories:
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility:

Individuals with epilepsy, their families and friends.

Services Provided:

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
PO Box 268
Lakewood, CA 90713
Phone: 888-970-0777
Service Categories:
Address:
PO Box 268
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Email: director@fivepminus.org
Eligibility:

Parents and health care providers of children with Cri Du Chat syndrome.

Services Provided:

Provides a comprehensive resource for accurate, up-to-date information, support, and acceptance to maximize the quality of life for individuals with 5p- and their families. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children. Also supports five Regional Family Get-Togethers per year.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Service Categories:
Address:
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Email: hello@anad.org
Services Provided:

The National Association of Anorexia Nervosa and Associated Disorders, Inc. (ANAD) is a non-profit organization working in the areas of support, awareness, advocacy, referral, education, and prevention. ANAD assists people struggling with eating disorders and also provides resources for families, schools and the eating disorder community. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Service Categories:
Address:
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately, a cure for people living with a brain tumor today, and anyone who will be diagnosed tomorrow.

  • Disease/Disability Information
  • Internet Information Resources
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Service Categories:
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Email: info@pancan.org
Languages Spoken: Spanish
Services Provided:

Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.

  • Specialized Information and Referral
  • Clinical Trials
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
PO Box 66122
Washington, DC 20035
Service Categories:
Address:
PO Box 66122
Washington, DC 20035
Email: info@autisticadvocacy.org
Services Provided: A national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power. Our staff work to advance civil rights, support self-advocacy in all its forms, and improve public perceptions of autism. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Policy advocacy toolkits, action alerts.
Source: MHP-Nationwide
Last Updated: 9/26/2019
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Service Categories:
Address:
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Fax: 703-465-5085
Email: info@acb.org
Wheelchair Access: Yes
Eligibility:

Those who are blind or visually impaired, their families, friends, doctors, caregivers, and anyone who works with blind or visually impaired people

Services Provided:

Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Resources: Offers a variety of resources, including Job Connection, Blind/Low Vision resources, peer support, and more

Scholarships: Scholarships for freshman, undergraduate, and graduate students. To be eligible for a scholarship, applicants need to be legally blind, maintain a 3.0 GPA to be eligible for most scholarships, be a full-time student (as well as students who work 32 or more hours per week and attend college part time), and be involved in their school/local community.

Programs and Services: Audio Description Project, Advocacy and Governmental Affairs, Radio, and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Service Categories:
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-657-6398
Fax: 202-349-1156
Email: info@lupus.org
Languages Spoken: Spanish
Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 6/3/2021
8403 Colesville Road, Suite 900
Silver Spring, MD 20910
Phone: 202-387-1968
Service Categories:
Address:
8403 Colesville Road, Suite 900
Silver Spring, MD 20910
Phone: 202-387-1968
Fax: 202-387-2193
Services Provided:

AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/25/2020
1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Service Categories:
Address:
1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Toll Free Phone: 800-872-5827
Fax: 202-776-0414
Services Provided: UCP and its 64 affiliates have a mission to advance the independence, productivity and full citizenship of people with a broad range of disabilities by providing services and support to more than 176,000 children and adults every day. UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
Service Categories:
Address:
820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
TDD: 202-408-9521
Fax: 202-408-9520
Eligibility: People with disabilities
Services Provided: Guards against abuse, advocating for basic rights, and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.Works on behalf of the federally mandated Protection and Advocacy P&A Systems and the Client Assistance Programs CAP for individuals with disabilities.

Assistive Technology Equipment
Information and Referral
Library Services
System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Service Categories:
Address:
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Toll Free Phone: 800-227-2345
Services Provided: Services include:
-Funding and conducting research
-Sharing expert information
-Supporting patients, including information about finding treatment and financial and transportation support for treatment
-Providing educational information and resources, including prevention information
Source: Nationwide Suggest Providers Queue
Last Updated: 2/21/2020
55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Service Categories:
Address:
55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Toll Free Phone: 800-586-4872
Services Provided:

Improving lung health and preventing lung disease through Education, Advocacy and Research. With the generous support of the public, we are "Fighting for Air."

Source: Nationwide Suggest Providers Queue
Last Updated: 10/28/2020
6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Service Categories:
Address:
6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Toll Free Phone: 855-858-2226
Fax: 301-962-3521
Services Provided: As a leader in the national fight against childhood cancer, we speak for the needs of families and survivors, and in doing so, we help shape policy, research, and programs, nationally and internationally, that affect the lives of cancer-stricken families today and tomorrow.

Co-Parenting Workshops
Family Support Centers/Outreach
Information and Referral
Library Services
Parent Support Groups
Support Groups
System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Service Categories:
Address:
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Toll Free Phone: 800-424-2634
Fax: 212-328-3777
Email: handi@hemophilia.org
Wheelchair Access: Not Applicable
Services Provided: Information about preventing the complications of these disorders through education, advocacy and research. Chapters throughout the US.

Services include:
-Information about bleeding disorders, blood types, and blood safety
-Online and in-person educational events and workshops
-Advocacy information
-[Camp Locator] helps families find a camp for a child with a bleeding disorder, siblings, or the family.
Source: Nationwide Suggest Providers Queue
Last Updated: 3/9/2020
1703 N. Beauregard Street
Alexandria, VA 22311
Service Categories:
Address:
1703 N. Beauregard Street
Alexandria, VA 22311
Toll Free Phone: 800-733-2258
Services Provided: With the purposes of: establish the right of persons with low vision to make full use of their vision through all available aids, services and technology; provide a mechanism through which low vision people can express their individual needs, interests and preferences; educate the general public, professionals, and low vision people themselves as to the potentialities, capabilities, and needs of low vision people; establish outreach programs to insure that all individuals with low vision have access to necessary services; promote research to prevent blindness, improve maximum utilization of sight, and improve environmental conditions and access for low vision people; support the development of and expansion of pre-service and in-service training programs to improve the quality and quantity of medical and rehabilitative low vision services.

System Advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Service Categories:
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility: Patients and families of children with congenital heart disease.
Services Provided: Mended Little Hearts services include: peer support and education, education resources, hospital outreach, CHD awareness, community health education, online community, and advocacy. Locator for a chapter nearby.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2019
JDRF View on Map
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Service Categories:
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Fax: 212-785-9595
Email: info@jdrf.org
Services Provided: JDRF's (formerly Juvenile Diabetes Research Foundation) primary objective is to fund research into Type 1 diabetes.
Also provides:
•Informational Guides
•Virtual community
•Local chapters
•Fundraising and social events
Source: Nationwide Suggest Providers Queue
Last Updated: 1/3/2020
275 N York St, Suite 201
Elmhurst, IL 60126
Phone: 630-617-5079
Service Categories:
Address:
275 N York St, Suite 201
Elmhurst, IL 60126
Phone: 630-617-5079
Fax: 630-563-9181
Email: info@american-hearing.org
Services Provided: Research funding and educational information about hearing disorders, including Tinnitus and Meniere's Disease.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/17/2020
PO Box 7762
Wilmington, DE 19803
Service Categories:
Address:
PO Box 7762
Wilmington, DE 19803
Services Provided:

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Source: MHP-Nationwide
Last Updated: 10/28/2020
1101 King Street, Suite 380
Alexandria, VA 22314
Phone: 703-535-7850
Service Categories:
Organization Name: American Network of Community Options and Resources (ANCOR)
(Show others in Organization)
Address:
1101 King Street, Suite 380
Alexandria, VA 22314
Phone: 703-535-7850
Services Provided:

The ANCOR Foundation is a 501(c)3 organization created to support the development of innovative programs and disseminate information that will improve the quality of life for people with disabilities.

Programs include:

  • Included. Supported. Empowered.: Three-year campaign to celebrate the successes of people with intellectual and developmental disabilities and the providers who support them through storytelling.
  • Case for Inclusion: A tool (published annually) evaluating all 50 states and DC on how well state programs are serving individuals with I/DD. In partnership with United Cerebral Palsy.
  • Leadership Academy: Immersive two-year program for mid-career professionals working as I/DD service providers.
Source: Nationwide Suggest Providers Queue
Last Updated: 7/31/2020
6965 El Camino Real, Suite 105-598
Carlsbad, CA 92009
Service Categories:
Address:
6965 El Camino Real, Suite 105-598
Carlsbad, CA 92009
Email: info@creatineinfo.org
Services Provided:

The Association for Creatine Deficiencies’ mission is to provide patient, family, and public education, to advocate for early diagnoses, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS).

Offers information for patients and families, including online support groups, for clinicians, and about research.

Source: MHP-Nationwide
Last Updated: 8/18/2020
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Service Categories:
Address:
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Services Provided:

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Source: MHP-Nationwide
Last Updated: 8/19/2020
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Service Categories:
Address:
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Email: info@hcunetworkamerica.org
Services Provided:

Resources, information, research information, and support for HCU.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Service Categories:
Address:
Services Provided:

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

Source: MHP-Nationwide
Last Updated: 8/19/2020
9040 Duluth Street
Golden Valley, MN 55427
Phone: 763-559-1797
Service Categories:
Address:
9040 Duluth Street
Golden Valley, MN 55427
Phone: 763-559-1797
Fax: 866-539-4060
Email: mkstagni@gmail.com
Services Provided:

Volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. Support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.

Source: MHP-Nationwide
Last Updated: 8/19/2020
4182 Adams Ave
San Diego, CA 92116
Phone: 833-281-7165
Service Categories:
Address:
4182 Adams Ave
San Diego, CA 92116
Phone: 833-281-7165
Toll Free Phone: 833-281-7165
Email: info@autism.org
Services Provided:

The Autism Research Institute (ARI) is the hub of a worldwide network of parents and professionals concerned with autism. ARI was founded in 1967 to conduct and foster scientific research designed to improve the methods of diagnosing, treating, and preventing autism. ARI also disseminates research findings to parents and others worldwide seeking help. The ARI data bank, the world's largest, contains over 40,000 detailed case histories of autistic children from over 60 countries.

Services:

  • Online educational events for parents and caretakers
  • Continuing medical education credit for physicians, teachers, dietitians, and occupational therapists
  • ATEC treatment assessment tool for individuals with Autism Spectrum Disorder
  • Resource Line
  • Research updates and newsletters
Source: Nationwide Suggest Providers Queue
Last Updated: 9/4/2020
PO Box 26853
San Jose, CA 95159-6853
Service Categories:
Address:
PO Box 26853
San Jose, CA 95159-6853
Email: info@ncsautism.org
Services Provided:

Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.

Offers:

  • Education to the public
  • Platform for policy discourse and services
  • Education for policy makers
  • Promote research
  • Promote awareness and acceptance
Source: MHP-Nationwide
Last Updated: 10/13/2020