Site Map
- About the Medical Home Portal
- About Medical Home
- Contact
- Feedback
- Guide to the Portal
- News and Events
- Family Events
- Professional Events
- The Portal Periodical
- December 2011
- December 2012
- December 2013
- December 2014
- December 2015
- December 2016
- December 2017
- June 2011
- June 2012
- June 2013
- June 2014
- June 2015
- June 2016
- June 2017
- June 2018
- March 2012
- March 2013
- March 2014
- March 2015
- March 2016
- March 2018
- September 2011
- September 2012
- September 2013
- September 2014
- September 2015
- September 2016
- September 2017
- Our Supporters & Partners
- Portal "Google™ Translate" Disclaimer
- Site Map
- Sign-in
- Site Search
- Diagnoses & Conditions
- Diagnosis Prevalence List
- Other Names for Diagnoses & Conditions
- Modules in Revision/Development
- Angelman Syndrome
- Anxiety Disorders
- Arginase Deficiency
- Asthma
- Attention Deficit Hyperactivity Disorder (ADHD)
- Autism Spectrum Disorder
- Biotinidase Deficiency
- Celiac Disease
- Cerebral Palsy
- Childhood Absence Epilepsy
- Childhood Obesity
- Constipation
- Cornelia de Lange Syndrome
- Depression
- Down Syndrome
- Duchenne and Becker Muscular Dystrophy
- Fabry Disease
- Fetal Alcohol Spectrum Disorders
- Foster Care
- Fragile X Syndrome
- Galactosemia
- Headache (Migraine & Chronic)
- Hearing Loss and Deafness
- Homocystinuria
- Infantile Spasms
- Inflammatory Bowel Disease
- Intellectual Disability
- LCHADD/TFP Deficiency
- Leukodystrophies
- Maple Syrup Urine Disease (MSUD)
- MCADD
- Mucopolysaccharidosis Type I (MPS 1)
- Myotonic Muscular Dystrophy Type 1
- Neurofibromatosis Type 1
- PKU and Pterin Defects
- Prader-Willi Syndrome
- Premature Infant Follow-Up
- Rett Syndrome
- Seizures/Epilepsy
- Sickle Cell Disease
- Spina Bifida
- Spinal Cord Injury
- Spinal Muscular Atrophy
- Substance Use Disorders
- Tourette Syndrome
- Traumatic Brain Injury
- Tuberous Sclerosis Complex (TSC)
- Turner Syndrome
- 22q11.2 Deletion Syndrome
- Tyrosinemia Type 1
- VLCADD
- XXY (Klinefelter) Syndrome
- Transgender and Gender-Diverse
- Newborn Disorders
- Arginase Deficiency
- Argininosuccinic Aciduria
- Beta-Ketothiolase Deficiency
- Biotinidase Deficiency
- CACT Deficiency
- CPT1 Deficiency
- Carnitine Uptake Defect
- Citrullinemia
- Congenital Adrenal Hyperplasia
- Congenital Hypothyroidism
- Critical Congenital Heart Disease
- Cystic Fibrosis
- Galactosemia
- Glutaric Acidemia Type 1
- Glutaric Acidemia Type 2
- Guanidinoacetate Methyltransferase (GAMT) Deficiency
- HMG-CoA Lyase Deficiency
- Hearing Loss & Deafness
- Holocarboxylase/Multiple Carboxylase Deficiency
- Homocystinuria
- Isobutyryl-CoA Dehydrogenase Deficiency
- Isovaleric Acidemia
- LCHADD/TFP Deficiency
- Malonic Acidemia
- Maple Syrup Urine Disease
- MCADD
- Methylmalonic Acidemias
- Phenylketonuria (PKU)
- Propionic Acidemia
- Severe Combined Immunodeficiency (SCID)
- Short-Chain Acyl-CoA Dehydrogenase Deficiency (SCADD)
- Short/Branched Chain Acyl-CoA Dehydrogenase Deficiency
- Sickle Cell Disease
- 3MCC Deficiency
- 2M3HBA Deficiency
- Tyrosinemia Type 1
- VLCADD
- For Parents & Families
- Finding Quality Information
- Before a Diagnosis
- After a Diagnosis or Problem is Identified
- A New (or Old) Diagnosis - "You Are Not Alone"
- Caring for Children with Special Health Care Needs
- Adoption of Children with Special Needs
- Advocacy/Finding Your Voice
- Complementary and Alternative Medicine (CAM)
- Finding Accessible and Affordable Childcare
- Foster Care of Children with Special Needs
- Groups and Therapies
- Handling Ignorance
- Hospital Care
- Management and Prevention of Constipation in Children
- Managing and Coordinating Care
- Other Resources
- Terms/Acronyms/Definitions
- Transportation and Travel for People with Disabilities
- Assistance in Choosing Providers
- What Choices Does Your Insurance Offer
- Choosing a Provider of Any Type
- Choosing a Primary Care Clinician
- Choosing a Subspecialist
- Choosing a Therapist
- Choosing a Mental Health Provider
- Choosing a Complementary and Alternative Medicine (CAM) Provider
- Dental Care Levels for CSHCN
- Trauma Treatment Models and Ratings
- Partnering with Healthcare Providers
- Top Ten Things to Do After a Diagnosis
- Early Services, 0-5 Years
- Education & Schools
- Bullying
- Navigating Transitions with Your Child
- School Transitions
- Transition to Adulthood
- After High School Options
- Employment/Daytime Activities
- Education
- Finding Adult Health Care
- Genetic Counseling
- Guardianship/Estate Planning
- Health Insurance/Financial Aids
- Healthy Relationships
- Independent Living
- Living Arrangements
- Tools & Checklists
- Self-Advocacy
- Transportation - Where's My Ride
- Transition-Related Legal Issues
- Assistive Technology
- Taking Care of Yourself and Your Family
- Other Needs
- Legal Issues
- Diagnoses & Conditions - FAQs
- Angelman Syndrome
- Anxiety Disorders
- Arginase Deficiency
- Asthma
- Attention Deficit Hyperactivity Disorder (ADHD)
- Autism Spectrum Disorder
- Biotinidase Deficiency
- Celiac Disease
- Cerebral Palsy
- Childhood Absence Epilepsy
- Childhood Obesity
- Constipation
- Cornelia de Lange Syndrome
- Depression
- Down Syndrome
- Fetal Alcohol Spectrum Disorders
- Duchenne and Becker Muscular Dystrophy
- Fabry Disease
- Fatty Acid Oxidation Disorders (MCADD, LCHADD, VLCADD)
- Foster Care
- Fragile X Syndrome
- Galactosemia
- Headache
- Hearing Loss and Deafness
- Homocystinuria
- Infantile Spasms
- Inflammatory Bowel Disease
- Intellectual Disability
- Leukodystrophy
- Maple Syrup Urine Disease (MSUD)
- Mucopolysaccharidosis Type I (MPS I)
- Myotonic Muscular Dystrophy
- Neurofibromatosis Type 1
- Phenylketonuria (PKU)
- Prader-Willi Syndrome
- Premature Infant Follow-Up
- Rett Syndrome
- Seizure Disorders
- Spina Bifida
- Spinal Cord Injury
- Spinal Muscular Atrophy
- Tourette Syndrome
- Transgender and Gender-Diverse Youth
- Traumatic Brain Injury
- Tuberous Sclerosis Complex
- Turner Syndrome
- 22q11.2 Deletion Syndrome
- XXY Syndrome
- Mental Health
- Story Central
- Funding Your Child's Special Needs
- For Physicians & Professionals
- Services Directory
- Other Resources
- CME Options
- Cornelia de Lange Syndrome Continuing Medical Education
- TBI Continuing Medical Education
- Get Help
- Get Help in Montana
- Get Help in Nevada
- Get Help in Utah
- New Design