Resources for Care Coordinators
Resources
Information & Support
For Professionals
www.benefits.gov
Free, confidential tool that helps you find government benefits and assistance.
Children's Health Insurance Program (CHIP)
This is the official U.S. government site for CHIP services; information includes eligibility, enrollment and general information
about health insurance for kids.
Medicaid
Official U.S. government site for Medicaid services.
State Government Links
Hosted by the federal government, this website provides links to official websites in the U.S. states and territories.
State Title V Snapshots
Title V programs for children with special health care needs (CSHCN) with measures and goals. Maternal and Child Health Bureau,
Federal-State Partnerships
State Part C Early Intervention Coordinators
Lists state contacts for Early Intervention (Part C) agencies and is an easy way to locate the person in charge of your state’s
Early Intervention programs; National Early Childhood Technical Assistance Center (ECTA Center).
American Academy of Pediatrics Chapter List
The American Academy of Pediatrics (AAP) chapters are organized groups of pediatricians and other health care professionals
working to achieve AAP goals in their communities.
Utah Chapter, American Academy of Pediatrics
American Academy of Pediatrics chapter site provides information about meetings, conferences, news, and other chapter activities.
American Academy of Family Physicians Chapter List
Genetics in Primary Care Institute (AAP)
Contains health supervision guidelines and other useful resources for the care of children with genetic disorders; American
Academy of Pediatrics.
For Parents and Patients
Support
Family Voices
A national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those
with special health care needs. Locate your Family-to-Family Health Information Center by state.
General
Find Your Parent Center
Parent Centers provide education and referrals for families with a child who has a disability, as well as the professionals
who work with them. There are almost 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers
(CPRCs) in the US states and Territories; Center for Parent Information & Resources.
Tools
CMHI Pediatric Care Coordination Assessment (
157 KB)
An example of a family/patient assessment form. Developed by the Center for Medical Home Improvement and Boston Children's
Hospital.
Care Coordination Curriculum (Boston Children's)
This page describes and links to an extensive curriculum for training practice-based care coordinators; developed by Richard
Antonelli, MD and others at Boston Children's Hospital.
Clinical Care Plan Template (
57 KB)
Editable care plan template. Developed by Jenna Robinson, Southpoint Pediatrics, West Jordan, Utah.
Family-Centered Care Assessment for Families (FCCA-F) ( 242 KB)
A survey to measure the quality of family-centered care that a health care provider gives to a child and family; for pediatricians
to give to families. Developed by Family Voices
Pre-visit Assessment Questions - sample ( 68 KB)
Questions asked by Summit Pediatrics in Park City, Utah to patient's family by phone prior to an appointment.
Transition Providers Request Form ( 61 KB)
A template letter to assess whether adult providers will take young adult patients with special health care needs.