Health Related Advocacy

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Organizations that are dedicated to protecting and improving the quality and affordability of health care for all individuals and advocating for changes that will achieve these goals. (AIRS TD-1600.2570 Health Related Advocacy Groups) Includes voluntary organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness.

2451 Crystal Drive, Suite 900
Arlington, VA 22202
Service Categories:
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided:

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Source: MHP-Nationwide
Last Updated: 5/9/2022
3817 Tuesday Way
Louisville, KY 40219
Phone: 502-905-0869
Service Categories:
Address:
3817 Tuesday Way
Louisville, KY 40219
Phone: 502-905-0869
Toll Free Phone: 800-733-2258
Email: cclvipresident@cclvi.org
Services Provided:

Provide support, resources, education, and advocacy for those who are impacted by low vision and visual impairment.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
P.O. Box 525
Kennebunk, ME 04043
Service Categories:
Address:
P.O. Box 525
Kennebunk, ME 04043
Toll Free Phone: 800-826-0826
Email: susanburns@ostomy.org
Services Provided:

Promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. Hosts a national network for bowel and urinary diversion support groups in the United States. 

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Service Categories:
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility:

Patients and families of children with congenital heart disease.

Services Provided:

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

  • peer support and education
  • education resources
  • hospital outreach
  • CHD awareness
  • community health education
  • online community
  • advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022